About Me

Behind The Screen: A Bit About Me

My name is Alexis Crow and I have ALS.  ALS is something that sort of dominates your life; the wheelchair announces the fact that I have a disability; my alternate methods and sometimes obvious need for assistance tends to emphasize this.  Doctors and drug trials and letters from the MDA (Muscular Dystrophy Association) are so layered within my life that it becomes me.  And yet it doesn’t.  This is a disease that consumes and limits and paralyzes mentally as well as physically.  But I am Alexis.  I am the Crow.  I will not be consumed, I will not be limited, I will not be stopped.  I chose, many months ago, that I would not be lost to this crippling disease and the only way I could do that was to envelop it within myself and make it not me, but simply part of me.

So allow me to start again;

My name is Alexis Crow.  I am 20 years old (in 2013).  I love art and music and ridiculously fantastic TV shows.  I read comic books.  I am a writer, an artist, a daughter, a niece, a lover and a friend.  I am creative and I am intelligent and I am strong.  I am beautiful and important and charismatic in my own way.  I am inspiring.  I can find humor everywhere. I am all of these things and so much more.  And I have ALS.

I started this site in part for my family, in part to raise awareness, and in part to inspire people.   So many people are consumed and overtaken by diagnoses that it turns living into dying, and that just reduces quality of life for themselves and their loved ones.  There is always something to find joy in.  There is always a reason to smile.

So, go forth and have a smile on me.  If you have any questions or comments, or anything you want me to see, let me know!!  I would love to hear anything you have to say!!

4 thoughts on “About Me

  1. Alexis, Your dad told me about your site about a month and I truly enjoy your weekly posts. I need your help. I lost your Dad’s phone no. He called me about my RV.
    I finally received my title and wanted to let him know. Thank you very much.
    Dan Mitchell 972-562-49-7

  2. Alexis, I have some questions about ALS…if you have time. You can email me or find me on Facebook…my profile picture is my daughter and I at a Rangers game. Hope to hear from you soon.

  3. The best introduction ever! I have read it many times, but for some reason never commented. My wish is that others will benefit and be inspired by your incredible perspective. Choosing to live with joy instead of choosing to be taken after this type of diagnosis is probably the most difficult thing to do. But if a sweet young lady can do it, why can’t others? Heck, even those who are down on life and luck can get a boost of inspiration from your blog. Even those who have lovely easy lives will benefit and be inspired by reading your story. Keep inspiring Alexis! The world needs you!

    I love your incredible spirit and how you look for and live for quality and adventure in this blessed gift we call life.

    I love you the mostest to infinity and beyond!
    ~Aunt Brandi

  4. Hi Alexis, We live in Dallas and my husband has ALS. We were told about your blog by the Study nurse at Texas Neurology. You are an amazing person with a wonderful spirit. So glad to be reading your blog.

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